My Story  

Living with sickle cell

Growing up, I experienced the pain of sickle cell first-hand. I didn’t understand what was happening in my body, and it frightened me that when I needed help, healthcare professionals might not know enough about the condition to help me.

Becoming a Doctor

I went on to study medicine and work as a doctor and GP, using my knowledge to help others in times of need. But when the system limited the quality of care I could provide, the physical and moral stress began to take a toll on my own health. I started looking for another way to use my experience as both a doctor and a patient to help people.

Creating Sickleverse

I saw an opportunity to reach people where they were already looking for health information: on social media. Sickleverse grew from the idea of connecting with people living with sickle cell around the world and providing clear, trustworthy education they could rely on. In a space often filled with misinformation, confusion and gaps in care, I wanted to create something that made good information easier to find and easier to understand.

Living with sickle cell

Growing up, I experienced the pain of sickle cell first-hand. I didn’t understand what was happening in my body, and it frightened me that when I needed help, healthcare professionals might not know enough about the condition to help me.

Becoming a Doctor

I went on to study medicine and work as a doctor and GP, using my knowledge to help others in times of need. But when the system limited the quality of care I could provide, the physical and moral stress began to take a toll on my own health. I started looking for another way to use my experience as both a doctor and a patient to help people.

Creating Sickleverse

I saw an opportunity to reach people where they were already looking for health information: on social media. Sickleverse grew from the idea of connecting with people living with sickle cell around the world and providing clear, trustworthy education they could rely on. In a space often filled with misinformation, confusion and gaps in care, I wanted to create something that made good information easier to find and easier to understand.

What Sickleverse is about

Sickleverse so far

“It is so essential to have a reputable experienced person with lived experience talk on sickle.”

Where Sickleverse is Heading

Sickleverse is still evolving, and I’m learning what works as I build it.
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I want to keep creating clear, practical sickle cell education that helps people understand their condition and make better decisions about their health. I also want to build a sustainable way of funding that work, so it can keep growing without relying on grants or personal investment.

In the future, I want that sustainability to help Sickleverse reach more people in places where access to sickle cell care and education is limited, without expecting those individuals to carry the full cost themselves.

The long-term goal is better access, better prevention and greater health equity for people living with sickle cell.

Help Sickleverse grow